TOPIC

Impact of new genomic technologies on patient care

 

VISION

Boost the effective utilization of genomic technologies.

 

MISSION

Recommend, develop, and support educational and financial policies.

 

SPECIFIC GOALS

PROJECT 1: Investigating the effectiveness, safety and costs of orphan medicinal products in spinal muscular atrophy: a systematic review and meta-analysis.

PROJECT 2: Investigating the health-economical impact of orphan medicinal products for patients with spinal muscular atrophy: Prospective follow-up study.