{"id":644,"date":"2015-08-01T10:24:59","date_gmt":"2015-08-01T08:24:59","guid":{"rendered":"https:\/\/semmelweis.hu\/rehabilitaciosklinika\/?p=644"},"modified":"2024-10-15T15:31:06","modified_gmt":"2024-10-15T13:31:06","slug":"ritkak-az-oori-galeriaban-2","status":"publish","type":"post","link":"https:\/\/semmelweis.hu\/rehabilitaciosklinika\/2015\/08\/ritkak-az-oori-galeriaban-2\/","title":{"rendered":"\u201eRITK\u00c1K\u201d az OORI Gal\u00e9ri\u00e1ban"},"content":{"rendered":"

A magyarorsz\u00e1gi\u00a02015. \u00e9vi Ritka Betegs\u00e9gek Vil\u00e1gnap\u00a0<\/strong>rendezv\u00e9nye \u00e1ltal gondozott \u201eRitka Sz\u00e9ps\u00e9gek gy\u0171jtem\u00e9nye\u201d<\/strong>\u00a0c\u00edm\u0171 ki\u00e1ll\u00edt\u00e1s ebben az \u00e9vben is ell\u00e1togatott az\u00a0OORI Gal\u00e9ri\u00e1ba<\/strong>. Ez\u00fattal nemcsak a ritka betegs\u00e9ggel \u00e9l\u0151k \u00e1ltal k\u00e9sz\u00edtett k\u00e9pz\u0151m\u0171v\u00e9szeti alkot\u00e1sok ker\u00fcltek bemutat\u00e1sra, hanem a\u00a0\u201eRitka betegek boldog pillanatai\u201d\u00a0<\/strong>c\u00edmmel meghirdetett\u00a0<\/strong>hazai fot\u00f3p\u00e1ly\u00e1zat nyertesei is csatlakoztak a t\u00e1rlathoz. A fot\u00f3ki\u00e1ll\u00edt\u00e1s betekint\u00e9st ny\u00fajt arr\u00f3l, hogy a ritka betegs\u00e9ggel \u00e9l\u0151knek \u00e9s csal\u00e1djaiknak a mindennapi k\u00fczdelmeik mellett is r\u00e9sz\u00fck van olyan pillanatokban, melyek \u00f6r\u00f6mtelik \u00e9s boldogok.<\/p>\n

A Vil\u00e1gnap minden \u00e9v febru\u00e1rj\u00e1nak utols\u00f3 napja, a f\u0151 hazai esem\u00e9nyeket 2015.03.01-\u00e9n a Semmelweis Egyetem Nagyv\u00e1rad t\u00e9ri Elm\u00e9leti T\u00f6mbj\u00e9ben tartott\u00e1k. A Ritka \u00e9s Velesz\u00fcletett Rendelleness\u00e9ggel \u00c9l\u0151k Orsz\u00e1gos Sz\u00f6vets\u00e9ge (RIROSZ<\/strong>) (www.rirosz.hu<\/a>), mely a Ritka Betegs\u00e9gek Eur\u00f3pai Szervezet\u00e9nek (www.eurordis.org<\/a>) tagja, mint a „Rare Diseases Hungary”, azaz a magyarorsz\u00e1gi „Ritka betegs\u00e9gekben szenved\u0151k szervezeteinek” hivatalos k\u00e9pvisel\u0151je az Eur\u00f3pai Uni\u00f3ban. A Vil\u00e1gnap f\u0151 c\u00e9lkit\u0171z\u00e9se felh\u00edvni a t\u00e1rsadalom \u00e9s a d\u00f6nt\u00e9shoz\u00f3k figyelm\u00e9t a ritka betegs\u00e9gekre \u00e9s a betegek \u00e9let\u00e9re gyakorolt hat\u00e1sukra. K\u00f6sz\u00f6nj\u00fck Bencsikn\u00e9 Mayer M\u00f3nik\u00e1nak a\u00a0RIROSZ<\/strong>\u00a0tagszervezete, a Cri Du Chat Bar\u00e1ti T\u00e1rsas\u00e1g k\u00e9pvisel\u0151j\u00e9nek, hogy ism\u00e9telten hozz\u00e1seg\u00edtette az OORI Gal\u00e9ri\u00e1nkat a \u201eRITK\u00c1K\u201d sz\u00ednvonalas ki\u00e1ll\u00edt\u00e1s\u00e1nak bemutat\u00e1s\u00e1hoz.<\/p>\n[slb_exclude]

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A magyarorsz\u00e1gi\u00a02015. \u00e9vi Ritka Betegs\u00e9gek Vil\u00e1gnap\u00a0rendezv\u00e9nye \u00e1ltal gondozott \u201eRitka Sz\u00e9ps\u00e9gek gy\u0171jtem\u00e9nye\u201d\u00a0c\u00edm\u0171 ki\u00e1ll\u00edt\u00e1s ebben az \u00e9vben is ell\u00e1togatott az\u00a0OORI Gal\u00e9ri\u00e1ba. Ez\u00fattal nemcsak a ritka betegs\u00e9ggel \u00e9l\u0151k \u00e1ltal k\u00e9sz\u00edtett k\u00e9pz\u0151m\u0171v\u00e9szeti alkot\u00e1sok ker\u00fcltek bemutat\u00e1sra, hanem a\u00a0\u201eRitka betegek boldog pillanatai\u201d\u00a0c\u00edmmel meghirdetett\u00a0hazai fot\u00f3p\u00e1ly\u00e1zat nyertesei is csatlakoztak a t\u00e1rlathoz. A fot\u00f3ki\u00e1ll\u00edt\u00e1s betekint\u00e9st ny\u00fajt arr\u00f3l, hogy a ritka betegs\u00e9ggel \u00e9l\u0151knek \u00e9s csal\u00e1djaiknak …<\/p>\n","protected":false},"author":102388,"featured_media":1087,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-644","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-hirek"],"acf":[],"_links":{"self":[{"href":"https:\/\/semmelweis.hu\/rehabilitaciosklinika\/wp-json\/wp\/v2\/posts\/644","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/semmelweis.hu\/rehabilitaciosklinika\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/semmelweis.hu\/rehabilitaciosklinika\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/semmelweis.hu\/rehabilitaciosklinika\/wp-json\/wp\/v2\/users\/102388"}],"replies":[{"embeddable":true,"href":"https:\/\/semmelweis.hu\/rehabilitaciosklinika\/wp-json\/wp\/v2\/comments?post=644"}],"version-history":[{"count":2,"href":"https:\/\/semmelweis.hu\/rehabilitaciosklinika\/wp-json\/wp\/v2\/posts\/644\/revisions"}],"predecessor-version":[{"id":1089,"href":"https:\/\/semmelweis.hu\/rehabilitaciosklinika\/wp-json\/wp\/v2\/posts\/644\/revisions\/1089"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/semmelweis.hu\/rehabilitaciosklinika\/wp-json\/wp\/v2\/media\/1087"}],"wp:attachment":[{"href":"https:\/\/semmelweis.hu\/rehabilitaciosklinika\/wp-json\/wp\/v2\/media?parent=644"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/semmelweis.hu\/rehabilitaciosklinika\/wp-json\/wp\/v2\/categories?post=644"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/semmelweis.hu\/rehabilitaciosklinika\/wp-json\/wp\/v2\/tags?post=644"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}