{"id":12389,"date":"2024-08-08T08:51:50","date_gmt":"2024-08-08T06:51:50","guid":{"rendered":"https:\/\/semmelweis.hu\/borklinika\/?p=12389"},"modified":"2024-08-08T09:29:05","modified_gmt":"2024-08-08T07:29:05","slug":"felhivas-az-epidermolysis-bullosa-eb-betegek-szulei-es-gondozoik-szamara","status":"publish","type":"post","link":"https:\/\/semmelweis.hu\/borklinika\/2024\/08\/08\/felhivas-az-epidermolysis-bullosa-eb-betegek-szulei-es-gondozoik-szamara\/","title":{"rendered":"Felh\u00edv\u00e1s az Epidermolysis Bullosa (EB) betegek sz\u00fclei \u00e9s gondoz\u00f3ik sz\u00e1m\u00e1ra"},"content":{"rendered":"
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Mondja el v\u00e9lem\u00e9ny\u00e9t az EB \u00e1ltal okozott teherr\u0151l!
\nA BUR-EB szeretn\u00e9 felm\u00e9rni az \u00d6n tapasztalatait az EB betegekkel val\u00f3 egy\u00fctt\u00e9l\u00e9sr\u0151l \u00e9s a mindennapi \u00e9letre gyakorolt hat\u00e1sair\u00f3l.<\/div>\n
T\u00f6ltse ki a 20 perces k\u00e9rd\u0151\u00edvet, hogy seg\u00edtsen azonos\u00edtani az EB gondoz\u00f3k legnagyobb neh\u00e9zs\u00e9geit \u00e9s a betegs\u00e9g p\u00e9nz\u00fcgyi hat\u00e1s\u00e1t, ezzel is hozz\u00e1j\u00e1rulva az EB-ben szenved\u0151k ell\u00e1t\u00e1s\u00e1nak jav\u00edt\u00e1s\u00e1hoz.<\/div>\n
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K\u00e9rj\u00fck ossza meg,<\/strong> hogy min\u00e9l t\u00f6bb r\u00e9sztvev\u0151 legyen Magyarorsz\u00e1gon is!<\/div>\n
Az EB-ben szenved\u0151, legfeljebb 17 \u00e9ves gyermekek \u00e9s gondoz\u00f3ik t\u00f6lthetik ki az al\u00e1bbi anonim k\u00e9rd\u0151\u00edvet<\/strong><\/a>,<\/span> 2024 augusztus v\u00e9g\u00e9ig.<\/div>\n
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Mondja el v\u00e9lem\u00e9ny\u00e9t az EB \u00e1ltal okozott teherr\u0151l! A BUR-EB szeretn\u00e9 felm\u00e9rni az \u00d6n tapasztalatait az EB betegekkel val\u00f3 egy\u00fctt\u00e9l\u00e9sr\u0151l \u00e9s a mindennapi \u00e9letre gyakorolt hat\u00e1sair\u00f3l. T\u00f6ltse ki a 20 perces k\u00e9rd\u0151\u00edvet, hogy seg\u00edtsen azonos\u00edtani az EB gondoz\u00f3k legnagyobb neh\u00e9zs\u00e9geit \u00e9s a betegs\u00e9g p\u00e9nz\u00fcgyi hat\u00e1s\u00e1t, ezzel is hozz\u00e1j\u00e1rulva az EB-ben szenved\u0151k ell\u00e1t\u00e1s\u00e1nak jav\u00edt\u00e1s\u00e1hoz. \u00a0 K\u00e9rj\u00fck …<\/p>\n","protected":false},"author":101244,"featured_media":12391,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[69],"tags":[],"class_list":["post-12389","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-hirek-hu"],"acf":[],"_links":{"self":[{"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/posts\/12389","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/users\/101244"}],"replies":[{"embeddable":true,"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/comments?post=12389"}],"version-history":[{"count":10,"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/posts\/12389\/revisions"}],"predecessor-version":[{"id":12416,"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/posts\/12389\/revisions\/12416"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/media\/12391"}],"wp:attachment":[{"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/media?parent=12389"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/categories?post=12389"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/tags?post=12389"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}