{"id":12366,"date":"2024-08-08T08:46:25","date_gmt":"2024-08-08T06:46:25","guid":{"rendered":"https:\/\/semmelweis.hu\/borklinika\/?p=12366"},"modified":"2024-08-08T09:27:40","modified_gmt":"2024-08-08T07:27:40","slug":"toltse-ki-a-bur-eb-kerdoivet","status":"publish","type":"post","link":"https:\/\/semmelweis.hu\/borklinika\/2024\/08\/08\/toltse-ki-a-bur-eb-kerdoivet\/","title":{"rendered":"T\u00f6ltse ki a BUR-EB k\u00e9rd\u0151\u00edvet"},"content":{"rendered":"<div dir=\"auto\">\u00d6n seg\u00edt vagy \u00e1pol valakit, aki Epidermolysis Bullosa-ban (EB) szenved?<\/div>\n<div dir=\"auto\" style=\"text-align: justify\">\u00a0<\/div>\n<div dir=\"auto\" style=\"text-align: justify\">\n<p>T\u00f6ltse ki a <a href=\"https:\/\/survey.saosl.com\/index.php\/382685?lang=hu%20#epidermolysisbullosa%20#EBkutat%C3%A1s%20#BUREB\" target=\"_blank\" rel=\"noopener\">BUR-EB k\u00e9rd\u0151\u00edvet<\/a>, hogy seg\u00edtsen azonos\u00edtani az EB terheit \u00e9s \u00e9letmin\u0151s\u00e9gre gyakorolt hat\u00e1s\u00e1t a gondoz\u00f3k k\u00f6r\u00e9ben, tov\u00e1bb\u00e1 a betegs\u00e9g p\u00e9nz\u00fcgyi hat\u00e1s\u00e1t. Mondja el v\u00e9lem\u00e9ny\u00e9t az \u00e1pol\u00e1sban seg\u00edts\u00e9get ny\u00fajt\u00f3 szem\u00e9lyeket \u00e9s EB betegeket \u00e9rint\u0151 k\u00e9rd\u00e9sekr\u0151l, hogy t\u00e1mogassa a j\u00f6v\u0151beli EB-ell\u00e1t\u00e1st!<\/p>\n<p>\n<strong style=\"font-size: 1rem\">K\u00e9rj\u00fck ossza meg<\/strong><span style=\"font-size: 1rem\"> &#8211; min\u00e9l t\u00f6bb r\u00e9sztvev\u0151re van sz\u00fcks\u00e9g\u00fcnk Magyarorsz\u00e1gon!\u00a0<\/span><\/p>\n<\/div>\n<div dir=\"auto\" style=\"text-align: justify\">A feln\u0151tt EB beteg gondoz\u00e1sban seg\u00edts\u00e9get ny\u00fajt\u00f3 szem\u00e9lyek 2024. augusztus v\u00e9g\u00e9ig kit\u00f6lthetik az <span style=\"font-size: 16pt\"><strong><a href=\"https:\/\/survey.saosl.com\/index.php\/382685?lang=hu #epidermolysisbullosa #EBkutat\u00e1s #BUREB\" target=\"_blank\" rel=\"noopener\">anonim k\u00e9rd\u0151\u00edvet<\/a><\/strong><\/span><span style=\"font-size: 16pt\"><strong><a href=\"https:\/\/survey.saosl.com\/index.php\/382685?lang=hu #epidermolysisbullosa #EBkutat\u00e1s #BUREB\" target=\"_blank\" rel=\"noopener\">.<\/a><\/strong><\/span><\/div>\n<div dir=\"auto\">\u00a0<\/div>\n<div dir=\"auto\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-12370\" src=\"https:\/\/semmelweis.hu\/borklinika\/files\/2024\/08\/EB2.jpg\" alt=\"\" width=\"1080\" height=\"1080\" srcset=\"https:\/\/semmelweis.hu\/borklinika\/files\/2024\/08\/EB2.jpg 1080w, https:\/\/semmelweis.hu\/borklinika\/files\/2024\/08\/EB2-400x400.jpg 400w, https:\/\/semmelweis.hu\/borklinika\/files\/2024\/08\/EB2-1024x1024.jpg 1024w, https:\/\/semmelweis.hu\/borklinika\/files\/2024\/08\/EB2-150x150.jpg 150w, https:\/\/semmelweis.hu\/borklinika\/files\/2024\/08\/EB2-768x768.jpg 768w, https:\/\/semmelweis.hu\/borklinika\/files\/2024\/08\/EB2-753x753.jpg 753w\" sizes=\"auto, (max-width: 1080px) 100vw, 1080px\" \/><\/div>\n<div dir=\"auto\">\u00a0<\/div>\n","protected":false},"excerpt":{"rendered":"<p>\u00d6n seg\u00edt vagy \u00e1pol valakit, aki Epidermolysis Bullosa-ban (EB) szenved? \u00a0 T\u00f6ltse ki a <a href=\"https:\/\/survey.saosl.com\/index.php\/382685?lang=hu%20#epidermolysisbullosa%20#EBkutat%C3%A1s%20#BUREB\" target=\"_blank\" rel=\"noopener\">BUR-EB k\u00e9rd\u0151\u00edvet<\/a> , hogy seg\u00edtsen azonos\u00edtani az EB terheit \u00e9s \u00e9letmin\u0151s\u00e9gre gyakorolt hat\u00e1s\u00e1t a gondoz\u00f3k k\u00f6r\u00e9ben, tov\u00e1bb\u00e1 a betegs\u00e9g p\u00e9nz\u00fcgyi hat\u00e1s\u00e1t. Mondja el v\u00e9lem\u00e9ny\u00e9t az \u00e1pol\u00e1sban seg\u00edts\u00e9get ny\u00fajt\u00f3 szem\u00e9lyeket \u00e9s EB betegeket \u00e9rint\u0151 k\u00e9rd\u00e9sekr\u0151l, hogy t\u00e1mogassa a j\u00f6v\u0151beli EB-ell\u00e1t\u00e1st! K\u00e9rj\u00fck ossza meg &#8211; &hellip;<\/p>\n","protected":false},"author":101244,"featured_media":12370,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[69],"tags":[],"class_list":["post-12366","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-hirek-hu"],"acf":[],"_links":{"self":[{"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/posts\/12366","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/users\/101244"}],"replies":[{"embeddable":true,"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/comments?post=12366"}],"version-history":[{"count":10,"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/posts\/12366\/revisions"}],"predecessor-version":[{"id":12413,"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/posts\/12366\/revisions\/12413"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/media\/12370"}],"wp:attachment":[{"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/media?parent=12366"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/categories?post=12366"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/tags?post=12366"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}