{"id":12353,"date":"2024-08-07T12:03:37","date_gmt":"2024-08-07T10:03:37","guid":{"rendered":"https:\/\/semmelweis.hu\/borklinika\/?p=12353"},"modified":"2024-08-08T09:26:20","modified_gmt":"2024-08-08T07:26:20","slug":"epidermolysis-bullosa-betegseggel-valo-egyutteles-anonim-kerdoiv","status":"publish","type":"post","link":"https:\/\/semmelweis.hu\/borklinika\/2024\/08\/07\/epidermolysis-bullosa-betegseggel-valo-egyutteles-anonim-kerdoiv\/","title":{"rendered":"Felm\u00e9r\u00e9s az Epidermolysis Bullosa betegs\u00e9g val\u00f3di terheir\u0151l (anonim k\u00e9rd\u0151\u00edv)"},"content":{"rendered":"
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Hogyan befoly\u00e1solja az Epidermolysis Bullosa (EB) az \u00d6n mindennapjait? Mennyire tud hozz\u00e1f\u00e9rni a l\u00e9tfontoss\u00e1g\u00fa eg\u00e9szs\u00e9g\u00fcgyi szolg\u00e1ltat\u00e1sokhoz?<\/div>\n
\u00a0<\/div>\n
BUR-EB az EB-vel val\u00f3 egy\u00fctt\u00e9l\u00e9s val\u00f3di terheit szeretn\u00e9 felm\u00e9rni, illetve azt, hogy a betegs\u00e9ge hogyan \u00e9rinti t\u00f6bbek k\u00f6z\u00f6tt:<\/div>\n
\u00a0<\/div>\n
\"\ud83d\udccc\"<\/span> az \u00d6n \u00e9letmin\u0151s\u00e9g\u00e9t<\/div>\n
\"\ud83d\udccc\"<\/span> az \u00d6n hozz\u00e1f\u00e9r\u00e9s\u00e9t a szoci\u00e1lis \u00e9s eg\u00e9szs\u00e9g\u00fcgyi szolg\u00e1ltat\u00e1sokhoz \u00e9s az el\u00e9gedetts\u00e9g\u00e9t<\/div>\n
\"\ud83d\udccc\"<\/span> az eg\u00e9szs\u00e9g\u00fcgyi ell\u00e1t\u00e1s \u00e9s az inform\u00e1lis gondoz\u00e1s k\u00f6lts\u00e9geit<\/div>\n
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\"\ud83d\udccc\"<\/span> az \u00d6n csal\u00e1dja p\u00e9nz\u00fcgyi h\u00e1tter\u00e9t<\/p>\n<\/div>\n<\/div>\n

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A BUR-EB inform\u00e1ci\u00f3kat gy\u0171jt az \u00d6n \u00e1ltal felhaszn\u00e1lt er\u0151forr\u00e1sokr\u00f3l \u00e9s vizsg\u00e1lja hogyan befoly\u00e1solja az EB az \u00d6n \u00e9s a gondoz\u00e1sban seg\u00edts\u00e9get ny\u00fajt\u00f3 hozz\u00e1tartoz\u00f3k \u00e9let\u00e9t.<\/div>\n
\u00a0<\/div>\n
K\u00e9rj\u00fck ossza meg tapasztalatait az anonim k\u00e9rd\u0151\u00edv kit\u00f6lt\u00e9s\u00e9vel, min\u00e9l t\u00f6bb r\u00e9sztvev\u0151re van sz\u00fcks\u00e9g\u00fcnk haz\u00e1nkban is!<\/div>\n
\u00a0<\/div>\n
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A kit\u00f6lt\u00e9s hat\u00e1rideje: 2024. augusztus 31.<\/strong><\/p>\n

A k\u00e9rd\u0151\u00edv kit\u00f6lt\u00e9s\u00e9hez k\u00e9rj\u00fck kattintson<\/strong> ide.<\/strong><\/a><\/span><\/span><\/p>\n

\"\"<\/p>\n

 <\/p>\n<\/div>\n

\u00a0<\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

Hogyan befoly\u00e1solja az Epidermolysis Bullosa (EB) az \u00d6n mindennapjait? Mennyire tud hozz\u00e1f\u00e9rni a l\u00e9tfontoss\u00e1g\u00fa eg\u00e9szs\u00e9g\u00fcgyi szolg\u00e1ltat\u00e1sokhoz? \u00a0 BUR-EB az EB-vel val\u00f3 egy\u00fctt\u00e9l\u00e9s val\u00f3di terheit szeretn\u00e9 felm\u00e9rni, illetve azt, hogy a betegs\u00e9ge hogyan \u00e9rinti t\u00f6bbek k\u00f6z\u00f6tt: \u00a0 az \u00d6n \u00e9letmin\u0151s\u00e9g\u00e9t az \u00d6n hozz\u00e1f\u00e9r\u00e9s\u00e9t a szoci\u00e1lis \u00e9s eg\u00e9szs\u00e9g\u00fcgyi szolg\u00e1ltat\u00e1sokhoz \u00e9s az el\u00e9gedetts\u00e9g\u00e9t az eg\u00e9szs\u00e9g\u00fcgyi ell\u00e1t\u00e1s \u00e9s az …<\/p>\n","protected":false},"author":101244,"featured_media":12386,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[69],"tags":[],"class_list":["post-12353","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-hirek-hu"],"acf":[],"_links":{"self":[{"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/posts\/12353","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/users\/101244"}],"replies":[{"embeddable":true,"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/comments?post=12353"}],"version-history":[{"count":10,"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/posts\/12353\/revisions"}],"predecessor-version":[{"id":12411,"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/posts\/12353\/revisions\/12411"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/media\/12386"}],"wp:attachment":[{"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/media?parent=12353"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/categories?post=12353"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/semmelweis.hu\/borklinika\/wp-json\/wp\/v2\/tags?post=12353"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}